Chronic illness

Chronic illness

StillPain.com was originally a blog about working and living gently while wrangling a host of chronic illnesses. It has now been folded into my main website for ease of maintenance. And also because it is impossible to separate my health issues from my working life - they have such a huge impact.

I continue to manage multiple painful chronic illnesses and auto-immune diseases, and am a breast cancer and cPTSD survivor.

You’ll find discussions of my illnesses, treatments, various medical systems, and specific doctors (anonymised) on this blog, along with how I work and chase a multitude of hobbies and interests gently with a good amount of pacing.

See all posts in the Chronic illness category

Note: I am not a doctor or physical therapist. Please see your doctor to identify the actual cause of your pain, mental or physical, and determine which treatments are appropriate for you. I do not take responsibility for the outcomes of any action you take based on information from this site.

Why “Still Pain”?

Still is a word that defines chronic pain in many more ways than just the adverb meaning ‘from the past and into the future’.

Still is quiet, peaceful, at rest, calm, subdued, and even is a synonym for ‘and yet’, ‘even though’, and ‘nonetheless’.

I have never known life without pain of some kind or another. It waxes and wanes, with the moon, with the seasons, with therapies and medication, and over the years. But it’s always a minimum of a 4/10. And none of it is curable.

It will only ever be still there.

Hormone: endometriosis, PCOS, fibrocystic mastopathy, lipedema, lymphedema, migraines, two types of breast cancer. And now, finally, menopause.

Inflammation / auto-immune: systemic sclerosis (kidney disease, lung disease, Reynaud’s), spondyloarthritis, psoriasis, IBS, enthesitis, chronic sinusitis, blepharitis, meibomitis, gingivitis, costochondritis, wrist tenosynovitis, shoulder bursitis, sciatica, Moreton’s neuromas, a torn meniscus and a slippy C2 joint in my spine (subluxation).

Secondary caused by the above: fibromyalgia, headaches, bruxism, neuralgia, demodicosis, fat necrosis in the transplant, and (unsurprisingly) high blood pressure, anxiety, depression, and insomnia.

Add in a number of allergies, a couple of different hernias, GERD, tinnitis, and cPTSD from a 14-year childhood of daily sexual abuse.

I can overwhelm any doctor or specialist in a matter of minutes.

But I’m still here, gently working, living and enjoying life.

Hobbies?

A placemat commission in progress on the table loom I love cats, tea, coffee, and good food - both the cooking and the eating.

My vast hobbies would take a few lifetimes, if they could: sewing, knitting, crochet, spinning, weaving, gardening, photography, reading, writing, anime, 3D printing, miniature painting, art of many types, music (both listening and playing), and gaming.

I am still shielding - I am immune-suppressed with stage 4 kidney disease. It is not safe for me to be near people who don’t take strict pandemic precautions.

Support me

Hire me: I write, edit and translate from German into English for freelance clients, either independently or through Upwork (if 3rd party tracking is required).

I do not use AI tools to generate or proof content - your work will not be ingested into a training database and will remain confidential.

Specialising in medical, legal (data privacy and contracts), IT, and any technical content, and double-checking academic references - important these days as AI tools fabricate fake references.

I’ve also written extensive marketing and economic content.

I’m open to art commissions and looking for new freelance writing/editing/translation clients.

Want a handspun, or handwoven gift, artwork or set of cards? Contact me!

Go home on this site to see my portfolio, shop, freelance services and more information.

A cosy cup of coffee wrapped in a handwoven woollen jacket Patreon: Originally started as a way to make ESL conversation class resources available to language teachers, but morphed into following everything that I’m learning and the creative projects I do along the way. If you want to support me, or follow my projects and learning journey, I’d love for you to join me.

Ko-fi: A shop front for original artworks, handwoven and crafted items, and bundles of ESL language resources for English teachers and students. You can also tip me a coffee there.

Mastodon: Toots about any topic that current lives in my head and needs an out. On a small instance at old.mermaid.town/@kymberly

Youtube: Occasional garden videos and snippets from daily life, in a slower 1-second-a-day style. Subscribe and enable notifications if you enjoy my videos.

Zazzle: Some older photography on gift cards and other products. This may move in the near future.

I am extremely grateful to you for supporting me with your time, attention, and/or financial support.

A collection of spoons for the spoonie theory - a way of pacing your life with chronic illness